When you have a baby, you're tired. Your hormones are out of whack, your periods are wonky, you might feel like crap and your hair falls out. Is it from "just being a tired mom" (said by your OB rather condescendingly) or is it because of something else?
When I was three or four months postpartum, I noticed weird stuff going on in my neck. As a side sleeper, I could no longer sleep that way without discomfort and even some pain. It was mildly uncomfortable to swallow, even though it wasn't the same as a typical sore throat pain. My neck swelled up and I thought I had some kind of virus, so I went to the doctor.
The physician's assistant thought maybe I had mono, so she ordered a blood test. It came back negative, but in the meantime she put me on antibiotics. After I took one pill, I thought, Wait a minute, mono is a virus, not bacterial. What the heck am I taking these for? I threw them out.
Another thing she told me: Stop breastfeeding for a while in case your baby gets what you have.
No way was I doing that. I knew my baby would be protected because I was nursing exclusively, and who's to say he wouldn't get it anyway?
I went at least another year before finding out why I felt half-dead most of the time, and probably another year on top of that before starting medication. I couldn't help but wonder, how many other "tired moms" go that long and then some with doctors throwing antidepressants at them, and everyone else patronizingly telling them, "Oh, you're just tired! Get more rest!"
In retrospect, I know now that I had postpartum thyroiditis, where the thyroid gland is affected by a surge of hormones and gets inflamed. In some cases it can last weeks or even months, and then go back to normal. In others, it makes you hypothyroid, and is under the umbrella of autoimmune thyroid disorders, or Hashimoto's disease.
Thyroid disorders can also make you feel depressed, on top of what you might already be feeling as a new mom who is struggling to adjust to changes or new additions in the family. In addition, another possibly huge impact on the new mother is how it can interfere with the breastfeeding relationship. I am bolding this simply because I feel that perhaps this is one component to lower breastfeeding rates, and perhaps the root of some women's difficulties with breastfeeding, that has perhaps been overlooked.
One of the signs is decreased milk volume in breastfeeding women. Considering how prevalent thyroid disorders are, it almost makes you wonder if this is one of the causes behind why some women are unsuccessful at breastfeeding and never really know why. And, according to the La Leche League, little if any research has been done on it - not only do many doctors not have a sound understanding of the mechanics of breast milk production, supply and demand, but seemingly few of those doctors truly understand thyroid disorders, either, sadly. This unknown factor in a mom's health could mean the difference between treating her condition properly or going years without knowing the true underlying cause of why she "couldn't nurse" her babies.
I posed this question of many thyroid patients recently and came up with interesting responses: I asked them if they ever had trouble breastfeeding, and if so, did they find out why? Some never had problems, others were, at one time, able to nurse very well and then suddenly production declined as they had more children. I noticed this myself: with my first, I could pump like crazy, but almost nothing with my second or third children. One said she was successfully able to nurse twins and then, in a later child, had supply issues. And some women said they tried everything - and nothing worked.
Breastmilk production is stimulated by prolactin, which is produced in the pituitary gland. Not coincidentally, the pituitary gland is also responsible for producing TSH, or thyroid stimulating hormone.
In reality, "any woman who has been pregnant can have postpartum thyroiditis," according to thyroid advocate Mary Shomon's website. There is the chance that the thyroid will return to normal in some women, but in others it can lead to a more persistent form of thyroid disorder, whether Hashimoto's or eventually full-blown hypothyroidism.
More reading:
Hashimoto's and Postpartum Thyroiditis
Thyroid problems after pregnancy: A look at postpartum thyroiditis
The impact of thyroid dysfunction on lactation - La Leche League
Friday, January 27, 2012
Thursday, January 26, 2012
Stupid crap my doctor says
I've said before that when it comes to getting my thyroid problems sorted out, my doctor's not too bad. He was totally open to me going to Armour Thyroid, hasn't said anything really objectionable and doesn't treat me like I'm crazy, which is a plus. Apparently, I'm really lucky in that department, though, because some people have an insanely hard time connecting with a doctor who knows what the hell they're doing.
When I first went to my OB for bloodwork, I knew something was wrong but wasn't sure what. After my results came back, he simply stated, "Your antibodies are elevated." When I asked him what that meant, he said, "It just means you'll eventually have to go on medication." Thanks for elaborating!
I've mentioned several times in past posts how a friend was told to "fake it" by her doctor when she was concerned about low sex drive and her thyroid function. He also told her to stop drinking pop (even though she doesn't) and to 'get off the couch.' Why, I'd love to, if only I wasn't so tired all I wanted to do was sleep. All. day. long.
I once got into a rather heated Facebook debate with a nurse practitioner who, along with her physician husband, thinks many of the people in her practice use it as an excuse. She went on about the TSH, and eventually changed her tune and shut up when I told her you can have high antibodies, hypo symptoms and a totally normal TSH, all at the same time.
I asked others and they told me this:
Amber: "The old "eat less, move more" mantra. I've eaten 900-1200 calories a day and exercised for 10-12 hours a week for months on end, and have still, little by little, kept gaining weight."
Beth: "That none of my symptoms...PMS, depression, weight gain, insomnia, anxiety - were thyroid-related. This was the same guy who said that a TSH of 9 was within normal limits and that Armour is unreliable."
LynnSue: "'You have Hashimoto's, but we don't keep track of your antibodies because it doesn't really mean anything and there is nothing we can do about it.' I was told this by SEVERAL doctors, most of them endocrinologists....My highly esteemed endocrinologist told me that my slow, steady weight gain was "middle age" (I'm 51) and that many of her female patients have chosen to get liposuction. 'I'm telling you that off the record,' she said. She never, ever tested by B-12 in the 15 years I was with her, even though Hashi's patients are often deficient in it. When I got it tested on my own (through my GP) and showed her the deficient results, she said, 'Well, I guess that one slipped under the radar.'"
Jessica: "I had the opposite of LynnSue. 'You have crazy high antibodies and 'normal' numbers otherwise. Go see a rheumatologist. I can't help you.'"
Rebecca: "'What you had before your thyroid was removed was Grave's Disease, but now it's called Hoshimoto's.' Seriously! 'All your levels are checking out fine so its not anything to do with your endocrine system. It's something else and nothing I can help you with further."
(Note: I've heard some people speculate that endocrinologists no longer know how to deal with thyroid problems because they're all seeing diabetes cases - which is a complication from hypothyroidism, by the way....)
Lisa: "'Eat 500 calories a day and try to work out more.' Keep in mind I was already lifting weights five times a week and going bald....Two of the four morons told me to eat 500 calories. I also was an anorexic/bulimic for years who recovered with Atkins. The others just thought I was tired from being a mom. Grrr..."
Terah: "'You have Hashimoto's, your TSH is below 2. Let's wait and see what happens.'" (And in the meantime, it's totally okay for you to feel like crap... we'll just wait for you to continue to fall apart, 'k?)
Michele: "'Thyroid problem? What thyroid problem? Your TSH is fine.'"
Kira: "'Here...take this Prozac..it will raise your serotonin and make you feel way better...it's not your thyroid.' Four days later, had a grand mal seizure and lost my four front teeth and developed a systemic blood poisoning from the infection that set in...Yeah, thanks, doc."
Pamela: "I was also told that my complete and total exhaustion, muscle pain, ataxia and weight gain was because I was a mom with a four-month-old...(ring a bell?) By the time my doc agreed to test me, my T3 and T4 levels were ZERO. He said he'd never seen numbers that low. This was 17 years ago. It's been a long, wild ride since then."
Lorrie: "I suffered 'tonsilitus' every year of my life until I finally found a doctor who knew the minute he saw me that I had Graves Disease (at age 43)... Then there was the cardiologist my doctor sent me to for a stress test... without even looking at my folder announced the reason I was sent to see her was because I was 'lazy.' (after two surgeries and gaining 60 pounds)
Suzie: "Me: 'Could your numbers be normal, but you still have symptoms?' Endo: 'No, that's impossible!' followed by a condescending head shake....'It's functional. Here is 7 mgs of Xanax. Also, here is Abilify, Zoloft, Paxil, Lexapro, Risperdal, Ambien, Adderall, Ritalin, etc. and an application for SSI!"
Nadia: "'People's bodies change a lot as they get older; it's normal that you're putting on weight and feeling tired - just eat less and exercise more!' At the time, I was 23, eating vegetarian and mostly raw food, working as a waitress and going to the gym 2-3 times a week!"
Yvonne: "'Your symptoms have nothing to do with you being hypothyroid; I want you to see a psychiatrist,' who consequently diagnosed me with somatization disorder (all in my head syndrome). My GP ate his words last month when he said, 'Your remarkable improvement on NDT can no longer be ignored.'" (emphasis mine)
Terah: "My first endo said, 'So you have a few symptoms. You don't need medicine for something that is going to slowly kill off your thyroid anyway.' (Hashi's) Then she went on to say since I was getting older that there was no need to have sex so the lack of sex drive was a benefit. I could not have made that one up!"
Dear Lordy be. I'm not even sure what to say about that one.
If this is your doctor's approach to treating your symptoms, run, run, far away!
More reading:
Why an endocrinologist or thyroidologist should probably not be your thyroid doctor
The many myths of hypothyroidism - Dr. Kenneth Blanchard
What's wrong with these doctors?
When I first went to my OB for bloodwork, I knew something was wrong but wasn't sure what. After my results came back, he simply stated, "Your antibodies are elevated." When I asked him what that meant, he said, "It just means you'll eventually have to go on medication." Thanks for elaborating!
I've mentioned several times in past posts how a friend was told to "fake it" by her doctor when she was concerned about low sex drive and her thyroid function. He also told her to stop drinking pop (even though she doesn't) and to 'get off the couch.' Why, I'd love to, if only I wasn't so tired all I wanted to do was sleep. All. day. long.
I once got into a rather heated Facebook debate with a nurse practitioner who, along with her physician husband, thinks many of the people in her practice use it as an excuse. She went on about the TSH, and eventually changed her tune and shut up when I told her you can have high antibodies, hypo symptoms and a totally normal TSH, all at the same time.
I asked others and they told me this:
Amber: "The old "eat less, move more" mantra. I've eaten 900-1200 calories a day and exercised for 10-12 hours a week for months on end, and have still, little by little, kept gaining weight."
Beth: "That none of my symptoms...PMS, depression, weight gain, insomnia, anxiety - were thyroid-related. This was the same guy who said that a TSH of 9 was within normal limits and that Armour is unreliable."
LynnSue: "'You have Hashimoto's, but we don't keep track of your antibodies because it doesn't really mean anything and there is nothing we can do about it.' I was told this by SEVERAL doctors, most of them endocrinologists....My highly esteemed endocrinologist told me that my slow, steady weight gain was "middle age" (I'm 51) and that many of her female patients have chosen to get liposuction. 'I'm telling you that off the record,' she said. She never, ever tested by B-12 in the 15 years I was with her, even though Hashi's patients are often deficient in it. When I got it tested on my own (through my GP) and showed her the deficient results, she said, 'Well, I guess that one slipped under the radar.'"
Jessica: "I had the opposite of LynnSue. 'You have crazy high antibodies and 'normal' numbers otherwise. Go see a rheumatologist. I can't help you.'"
Rebecca: "'What you had before your thyroid was removed was Grave's Disease, but now it's called Hoshimoto's.' Seriously! 'All your levels are checking out fine so its not anything to do with your endocrine system. It's something else and nothing I can help you with further."
(Note: I've heard some people speculate that endocrinologists no longer know how to deal with thyroid problems because they're all seeing diabetes cases - which is a complication from hypothyroidism, by the way....)
Lisa: "'Eat 500 calories a day and try to work out more.' Keep in mind I was already lifting weights five times a week and going bald....Two of the four morons told me to eat 500 calories. I also was an anorexic/bulimic for years who recovered with Atkins. The others just thought I was tired from being a mom. Grrr..."
Terah: "'You have Hashimoto's, your TSH is below 2. Let's wait and see what happens.'" (And in the meantime, it's totally okay for you to feel like crap... we'll just wait for you to continue to fall apart, 'k?)
Michele: "'Thyroid problem? What thyroid problem? Your TSH is fine.'"
Kira: "'Here...take this Prozac..it will raise your serotonin and make you feel way better...it's not your thyroid.' Four days later, had a grand mal seizure and lost my four front teeth and developed a systemic blood poisoning from the infection that set in...Yeah, thanks, doc."
Pamela: "I was also told that my complete and total exhaustion, muscle pain, ataxia and weight gain was because I was a mom with a four-month-old...(ring a bell?) By the time my doc agreed to test me, my T3 and T4 levels were ZERO. He said he'd never seen numbers that low. This was 17 years ago. It's been a long, wild ride since then."
Lorrie: "I suffered 'tonsilitus' every year of my life until I finally found a doctor who knew the minute he saw me that I had Graves Disease (at age 43)... Then there was the cardiologist my doctor sent me to for a stress test... without even looking at my folder announced the reason I was sent to see her was because I was 'lazy.' (after two surgeries and gaining 60 pounds)
Suzie: "Me: 'Could your numbers be normal, but you still have symptoms?' Endo: 'No, that's impossible!' followed by a condescending head shake....'It's functional. Here is 7 mgs of Xanax. Also, here is Abilify, Zoloft, Paxil, Lexapro, Risperdal, Ambien, Adderall, Ritalin, etc. and an application for SSI!"
Nadia: "'People's bodies change a lot as they get older; it's normal that you're putting on weight and feeling tired - just eat less and exercise more!' At the time, I was 23, eating vegetarian and mostly raw food, working as a waitress and going to the gym 2-3 times a week!"
Yvonne: "'Your symptoms have nothing to do with you being hypothyroid; I want you to see a psychiatrist,' who consequently diagnosed me with somatization disorder (all in my head syndrome). My GP ate his words last month when he said, 'Your remarkable improvement on NDT can no longer be ignored.'" (emphasis mine)
Terah: "My first endo said, 'So you have a few symptoms. You don't need medicine for something that is going to slowly kill off your thyroid anyway.' (Hashi's) Then she went on to say since I was getting older that there was no need to have sex so the lack of sex drive was a benefit. I could not have made that one up!"
Dear Lordy be. I'm not even sure what to say about that one.
If this is your doctor's approach to treating your symptoms, run, run, far away!
More reading:
Why an endocrinologist or thyroidologist should probably not be your thyroid doctor
The many myths of hypothyroidism - Dr. Kenneth Blanchard
What's wrong with these doctors?
Wednesday, January 25, 2012
I'm on thyroid meds, but why aren't they working?
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| Without my Synthroid and six cups of Starbucks, I'm worthless in the mornings! Just ignore that eye twitch. Photo credit: freeretroclipart.com |
I asked a fellow bus stop mom and Synthroid user if she felt good. She said she was tired all the time, among other things, and was surprised when I told her those were all symptoms of hypothyroidism. I'm not even sure she knew what many of the symptoms even were, so I wondered, how does she know if her meds are even working or not? She went on to tell me that she's been on the same dosage since her first child was born, like 11 years ago.
I wasn't going to give her medical advice, but it almost sounded like she needed a dosage adjustment to me. Eleven years is a long time to be on the same dose, especially if you've had a baby and are still having symptoms. Every month I get mine filled, a nice warning label appears on the bottle: "This medicine may need adjustment if you are pregnant." If you've had a baby, that can definitely throw things off.
Menopause can also mess things up, as many women blame it for symptoms like depression, low sex drive and fatigue - when, in fact, their thyroid function is low. This can explain why some women still exhibit symptoms even while on hormone replacement therapy.
It's also important to remember that even though your TSH might be "within normal limits," it might be high for you. You are not the same person as someone else, and lowering it even a few points could make a world of difference. Some references say especially women should have "at least a TSH" done every year once they reach 35, but in my opinion I'd want more than just that: because the damage could already be occurring. If you have Hashimoto's like I do, you may benefit from treatment before your TSH even shows a real problem.
Some other things that come to mind that are possibly worth looking into if your meds aren't working:
• You haven't been on them long enough. For me, when they were really working, it worked well. But honestly, I sometimes wonder if I didn't give it enough time to really do its thing. On one hand, it's been eight months, but on the other, it sometimes takes quite a while before finding the right dose that works for you. I can't say I feel bad all the time, and can't honestly expect to feel perfect every single day. One thing I remember reading in Dr. Mark Starr's book - for some people, it can take awhile for everything to "unclog" once they start on meds. I think it's very easy to give up too easily because it is often a pain in the ass to reach that perfect point, and when you're as motivated as a snail to begin with, it's bad enough as is it.
• You're on generic instead of name brand. For some people, there is a difference, despite what your doctor thinks. Your thyroid is like a computer: if you're running software for a PC but you have a Mac, it ain't gonna work very well, or for too long. It might be okay for a little while, and then suddenly things start to go haywire. But, it's different for everyone.
• If you're on Armour, know that the product was reformulated several years ago. Because they changed the type of fillers they use to bind the pill, some people cannot digest it and break it down to effectively use the medication. Some people have tried it sublingually, some break it in half, some crush it - it might take some tinkering if you suspect this problem, so don't give up. Some people also split their pills in half and take several doses throughout the day with great success.
• You aren't taking it correctly. This one seems like a no-brainer, but maybe not for everyone. Although some people report no problems, most medical literature and pharmaceutical inserts will tell you to avoid eating for an hour after taking your pill. Certain products, like anything containing calcium, should not be taken for up to four hours after taking it. Some people, including myself, take it in the early morning hours (since we're already awake to go pee or tuck a kid back into bed). You should also avoid anything containing estrogen or iron when you take your thyroid medicine for maximum absorption.
• You're on the same dose for too long. I've noticed that if I needed a raise in dose, it was going to happen within about 2-3 weeks after the initial dosage. On a couple occasions if I waited too long to raise, it was like I experienced all the old symptoms and then some, like I was crashing big-time.
• Janie Alexander at the Stop the Thyroid Madness website says patients are often afraid to raise their dose - and I can understand why, to some extent. Splitting a pill in half might not hurt just to try it - but don't do too much. I'm not giving medical advise, but I've often doubled my dose with good results, depending on the dose I started with (for instance, I'd rather double a 30 mg dose than a 60 mg one!). It's important to increase gradually and not by too much, like when I wanted to go from 60 to 75 mg of Armour and thought I was going to die. I guess I know now where my personal threshold is...
• To complicate things even more, Janie suggests that even though you are experiencing hyper- symptoms, it could be more from things like adrenal fatigue. Cutting and pasting because it just makes much more sense when she says it:
"Yes, a doctor can guide you to go too high with desiccated thyroid and you’ll have hyper symptoms. You would then want to decrease your amount. But even more common is having hyper-like symptoms (anxiety, shakiness, fast heart rate, etc), especially on doses lower than 3 grains, because of underlying low-functioning adrenals (i.e. not enough cortisol), or even a low Ferritin or iron—-each and/or both of which can be quite common in hypothyroid patients. So it can be wise to get both your iron and cortisol levels checked."And if that wasn't complicated enough, some don't even believe that adrenal fatigue is even possible. One doctor poo-poohs it and says that accepting a diagnosis from an unqualified practitioner can make you sicker - while the "real diagnosis" of depression and fibromyalgia - go untreated. (By the way, depression is a common symptom of hypothyroidism, and many believe there is a connection between fibromyalgia and low thyroid function. Just thought I'd throw that in.)
• You would do better on Armour Thyroid. If T4 only meds don't work for you anymore, perhaps you need to switch to something else and see how it works.
More reading:
Mistakes patients (and their doctors) make - Stop the Thyroid Madness
Adrenal fatigue/exhaustion
Tuesday, January 24, 2012
You've lost that lovin' feeling
If you've ever opened a spam email, seen an infomercial or traveled down the vitamin aisle at the pharmacy, you have probably seen the (often ridiculous) products marketed to men to the improve their sex drive. The commercials for Levitra and similar products are vomit-inducing for sure, and kind of make me laugh - what about all those women with low sex drive? Who are these women that men are trying to please by rushing out to order libido enhancers?The claims they make are laughable - and I can't believe reputable pharmacies are actually selling this crap. But what I want to know is, where are the female enhancement pills? Why does no one seem to care about that?
According to one 2008 study, upwards of 40 percent of women report having a low sex drive. While the Levitra ads are geared towards people reaching retirement age, studies indicate young women have this problem, too. Many think that use of antidepressants and birth control can be to blame - Paxil, for one, is a known killer of the sex drive. Apparently, many of the women in the study also reported being depressed - and noticed a further decrease in libido when using antidepressants.
Guess what? Depression and low sex drive can also be signs of a thyroid disorder! Of course, the article doesn't mention the word "thyroid" as a cause anywhere. Many popular medical sites often do not include low sex drive as a symptom; in fact, one site suggested it was only a problem in men.
Women are often embarrassed to talk about sexual problems with their doctors, and many times it's blamed on lifestyle: busy, working full time, raising children, "you're tired!" Nah, I don't think so. While it can certainly contribute to that, it often doesn't get to the root of the problem. And if your care provider doesn't know it's a symptom, they're more likely to brush you off.
Awhile back I blogged about a friend who's doctor insisted she "stop drinking too much soda pop" in response to her noticeable weight gain, even though she doesn't drink pop, she said. As far as her excruciatingly low sex drive, her doctor's advice was to "fake it." How horrifying.
So, we market millions of dollars worth of junk medicine to men in an attempt to restore their "function," but women get relegated to the back burner - perhaps even ignored and brushed off - when it comes to their sexual problems. 'Just blame it on kids!'
Ladies, just another reason to get your thyroid tested. And men, skip the worthless enhancement pills and get yours checked, too!
More reading:
Low Sex Drive and Thyroid Disease
Sex Drive 101 for Thyroid Patients
Low sex drive in women
Monday, January 23, 2012
Synthroid vs. Armour: Squashing the competition
When it comes to treating thyroid problems, your physician will probably prescribe one drug: synthetic thyroid hormone, either Synthroid or a generic equivalent. Generic levothyroxine is one of the most popularly prescribed drugs in the United States. And in 2010, profits of Synthroid rose over 18 percent and made Abbott Pharmaceuticals $123 million dollars richer.
There are alternatives to Synthroid, but you'd never know it based on some of the information from doctors and major thyroid advocacy websites. In some of the research I've done on thyroid treatment natural desiccated thyroid (NDT) isn't even mentioned at all.
Many doctors tell their patients it's "outdated," old-fashioned or "isn't even on the market anymore," and some outright refuse to prescribe it for their patients. Some patients give it a bad rap because it caused problems for them, when really it's probably the prescribing physician who is not dosing them properly. Basically, many thyroid groups and physicians are detracting patients from using NDT and funneling them towards Synthroid - perhaps because of financial incentives, pervasive myths and incorrect information about the product.
One theory is because desiccated thyroid comes from an animal source, it cannot be patented. While cost can vary, Armour Thyroid is roughly half the cost I used to pay for Synthroid, and Armour has both T3 and T4 in it - whereas synthetic is T4 only. (Each hormone level is essential in the thyroid's production, basically, to give your body energy, but the mainstay of thyroid treatment these days only includes one hormone rather than a little of each.)
Many doctors tell their patients it's "outdated," old-fashioned or "isn't even on the market anymore," and some outright refuse to prescribe it for their patients. Some patients give it a bad rap because it caused problems for them, when really it's probably the prescribing physician who is not dosing them properly. Basically, many thyroid groups and physicians are detracting patients from using NDT and funneling them towards Synthroid - perhaps because of financial incentives, pervasive myths and incorrect information about the product.
One theory is because desiccated thyroid comes from an animal source, it cannot be patented. While cost can vary, Armour Thyroid is roughly half the cost I used to pay for Synthroid, and Armour has both T3 and T4 in it - whereas synthetic is T4 only. (Each hormone level is essential in the thyroid's production, basically, to give your body energy, but the mainstay of thyroid treatment these days only includes one hormone rather than a little of each.)
There are synthetic T3 meds like Cytomel, but guess what that means: you have to have two prescriptions filled, instead of just one with natural desiccated thyroid. More prescriptions to fill means you spend more money. Name-brand Cytomel runs around $40 per 30-day prescription on drugstore.com, and generic is about $30 for a 30-day supply. Add that to a month's worth of Synthroid and two prescription T3-T4 meds will cost around $70 a month versus $14.99 for Armour (depending on the dose, of course).
Before the advent of blood tests that were supposed to be the magic answer to every problem, doctors paid more attention to symptoms. Before synthetic versions were introduced to the market, thyroid patients were treated with natural desiccated thyroid and many did very well. Some adjustments were accounted for, because every patient was different. Many criticize it as being "unregulated," although I'm sure science has improved since then, but natural thyroid is a prescription medication and therefore has to go through the same regulatory process as any other drug.
While some people do wonderfully on Synthroid, not all do - even though many medical professionals tell them it's their only option. Not only that, but many people believe - and know to be true, based on personal experience - that there is wide variation in effectiveness between brands of synthetic hormone, as well as between name-brand and generic. As a pharmacy technician, the pharmacist told me this when filling prescriptions for patients, and I still hear these same stories from thyroid patients all over the web. When I got my prescription filled for the first time, the pharmacist herself reiterated the same thing: that many (many!) patients believe name-brand to be superior, and it's not just psychological as some would have us to believe.
Not long ago generic levothyroxine came under fire because its strength was not as potent as it should be. The medication was recalled and brought to light problems people were having with a return to symptoms while being medicated. As far as synthetic versus name-brand, I've heard that the FDA considers the potency of synthetic hormones to be between "90 to 110 percent," which can mean a huge difference for some people. But, because it's sanctioned by the FDA and considered "true," drugs like Armor are considered poorly regulated and should be avoided. Gee, I wonder why they'd say that? It seems that the synthetic hormone drugs have the same problems that doctors are criticizing Armour for.
Some websites wage an all-out attack on natural desiccated thyroid and label it "do not use" because it's
- not adequately guaranteed to provide appropriate blood levels of thyroid hormone and reliable alternatives are available.
Seriously? Tell that to all the patients who are doing well on natural thyroid medications! Curiously, the same website - "Worst Pills, Best Pills" - mentions a lawsuit brought to the manufacturers of Synthroid because they suppressed information that supposedly proved they were wrongly influencing patients to believe their medication was superior to generics, even though "scientific" evidence had shown it was the same. While many people complain of a return to symptoms if their medication was switched, medical professionals often pass this off as "psychological." (So that irregular bleeding that my neighbor complained of when her insurance company switched her meds without asking was all in her mind, right?)
The site goes on to say that it should not be taken except by those who have found successful results from it "for years" - meaning, they want a whole new generation of thyroid sufferers to be dependent on crappy, subpar medication and not realize that many of their symptoms still prevail and are not normal. Perhaps the most frustrating problem is the medical community's tendency to "fix it and forget it" when it comes to thyroid problems, as if one dosage is going to solve everything. In reality, for many people it's a complicated, often tedious process that is well worth it if you can find relief.
Quackwatch.org tries very hard to completely discredit Armour Thyroid and the doctors who prescribe it by telling you to be "wary" of anyone who dispenses it. Funny, but I bet there are lots of people who have been totally let down by synthetic hormones who would love to find a competent doctor to prescribe them desiccated thyroid. Again, all those people who manage to do well on it must be crazy. They try to paint a dismal picture about the effectiveness and potency of Armour, while synthetic hormones have had exactly the same problems.
(Ironically, I googled the guy's name who runs Quackwatch and found that he was misrepresenting himself as a licensed psychiatrist during court proceedings he was asked to participate in as an "expert." He also apparently has ties to the FDA, which explains his distrust of physicians who will prescribe Armour.)
Quackwatch.org tries very hard to completely discredit Armour Thyroid and the doctors who prescribe it by telling you to be "wary" of anyone who dispenses it. Funny, but I bet there are lots of people who have been totally let down by synthetic hormones who would love to find a competent doctor to prescribe them desiccated thyroid. Again, all those people who manage to do well on it must be crazy. They try to paint a dismal picture about the effectiveness and potency of Armour, while synthetic hormones have had exactly the same problems.
(Ironically, I googled the guy's name who runs Quackwatch and found that he was misrepresenting himself as a licensed psychiatrist during court proceedings he was asked to participate in as an "expert." He also apparently has ties to the FDA, which explains his distrust of physicians who will prescribe Armour.)
Depending on the nature of your remaining symptoms - say, depression is one of them - it's often perceived that you're "fine" because your TSH is "normal" and you're taking meds. So let's treat your depression. Or any of the other slew of problems you have that are unknowingly caused by your thyroid and the crappy management of it. That will require a few more scripts, some of which are astronomically expensive. High blood pressure and cholesterol levels? Hey, there's a drug for those. Instead of taking one thyroid medication to address the root cause, let's put you on a number of meds that address each symptom, until your medicine cabinet looks like a mini pharmacy.
When you consider how pervasive hypothyroidism is, and yet how under-treated (or improperly treated) it is, it makes you wonder. It seems like more of a scam to get you to spend lots of money on unnecessary prescriptions. More and more people are feeling lied to, like our doctors want - and expect - us to completely, blindly trust them and just suffer the consequences when they are wrong. Considering there are other treatments out there, they should let that decision ultimately be made by the patient - and counsel you accordingly - instead of distort or hide information.
Labels:
patient advocacy,
thyroid disorder
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Monday, January 16, 2012
The Deranged Housewife.... crafts!
Call it a beginning of the year inspiration, maybe the coffee's kicking in.... but I've been debating on what to do for months with the craft blog I (don't) maintain. Yes, there is another.... said in my best Darth Vader voice. I have a craft blog, and for the longest time I've been wondering what to do with it.
I haven't maintained it in over a year, but it's obvious someone's watching/reading (really?!). One of my photos got lots of hits, which means crafty people like me are searching the net for ideas and perhaps got something out of my blog. Wonders never cease! So perhaps that was the impetus for me finally getting off my butt and doing something about it, by announcing it here. Just so you know I do more than eat, sleep, dream, write, breathe and talk birth and all things pregnancy-related.
I've been an (mostly) avid sewer since I was a kid, and have periods where I wax and wane when it comes to crafting in my Woman Cave. But hopefully maintaining this blog will help me to be more motivated to share with others who might be interested. I hope you enjoy what you see! And I hope I can remember to post more often!
Click here: Craftiest Mom on the Block
I haven't maintained it in over a year, but it's obvious someone's watching/reading (really?!). One of my photos got lots of hits, which means crafty people like me are searching the net for ideas and perhaps got something out of my blog. Wonders never cease! So perhaps that was the impetus for me finally getting off my butt and doing something about it, by announcing it here. Just so you know I do more than eat, sleep, dream, write, breathe and talk birth and all things pregnancy-related.
I've been an (mostly) avid sewer since I was a kid, and have periods where I wax and wane when it comes to crafting in my Woman Cave. But hopefully maintaining this blog will help me to be more motivated to share with others who might be interested. I hope you enjoy what you see! And I hope I can remember to post more often!
Click here: Craftiest Mom on the Block
Labels:
blogging,
sewing and crafts
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Saturday, January 14, 2012
On birth suites and breastfeeding: what a busy week!
I've been slacking - I'm supposed to be writing posts about thyroid awareness, but considering the busy week the entertainment industry's been having, I couldn't help but get distracted!
Beyonce's Birth Suite
First, Beyonce had her baby. Woo. I know, I'm like the 400th person to write a blog post about it, and really, it doesn't matter to me whether she had a natural birth or a cesarean. Well, in some ways it matters, yes - but not in the way some people think it does. Without rehashing too much of what everyone else has said, I do think how a woman gives birth matters: in the sense that surgical births are completely downplayed and approached with almost a blasé attitude, to the point where vaginal births - normal ones, anyway - are almost considered "old-fashioned." If she got the birth she wanted, then great - either way. When the entire world thought she had a cesarean at 37 weeks for breech, though, I wondered aloud, "What if this is the best information she had at the time? Many of us, including myself, have been there."
Anyway, once photos of her birth suite were leaked, it got me thinking: why does someone have to be of "celebrity" or important status to have a comfortable, homey-looking place like this? Why do the rest of us get relegated to a double room with a complaining, loud roommate and plastic furniture?
I thought back to my own births. I gave birth to three children in two hospitals. My first was a cesarean, I was ill-informed, scared, and alone. My husband wasn't allowed to stay overnight with me, despite the fact there was a very empty bed next to mine the entire time I was there. Nurses ignored my repeated requests for pain medication, despite the obvious fact that something was wrong, and it was just a miserable experience overall. When my baby was born, he was quickly shown to me and then taken out in the hallway to be weighed and measured - which my husband witnessed - as I lay on the operating table, hearing his first cries. I thought to myself, I've just given birth, but this is so freaking surreal. I want to hold my child. When my husband cried tears of joy, they actually asked him if he was going to be okay, like something was wrong with him. Seriously?!
When it was time to get up and move around for the first time, I was in such pain I felt like my body was being seared in half. The nurse was unsympathetic. They actually told me to go get my own breakfast. I was confused, half-drugged with drugs that only half-worked, wondering where I was supposed to go to get it. Someone felt sorry for me and brought me a turkey sandwich. I thought this was odd, considering when I had my VBAC two years later (the birth I could have done cartwheels after) they brought me all my meals. What?
For many women, just to have an unmedicated birth, they have to practically fight tooth and nail for it. Many are laughed at when they walk into the doctor's office with a birth plan. Many don't want anything all that special, except to maybe keep vaginal exams to a minimum, dim the lights and let them push in a position that feels comfortable to them, instead of to the doctor. In other words, they want their personal space respected as much as humanly possible, instead of be made to feel like a human science experiment, especially when it isn't necessary.
It's sad that we can't afford more laboring women the comforts of home within the "safe" confines of a hospital setting, since most people think hospitals are the best, safest place to give birth. Fine. Birthing centers seem to offer the best of both worlds, if you can find one. I know my city doesn't have any, that's for sure.
I think only within the last four or five years did my hospital convert their maternity rooms to private. In fact, there are those that can be reserved - as if you're a celebrity - but of course there's so few of them that they often get taken first. Birthing tubs and jacuzzis? Only four, available first-come, first-serve. I was denied access to them with my second birth because I was having a VBAC. Whatever. Apparently waterproof dopplers hadn't yet been invented in 2006. *eyeroll*
(Although they do mention CPMs, how they can lower infection and cesarean rates, fewer complications and healthier outcomes, based on WHO recommendations. So I'll give them that.)
Although hospitals go through expensive remodeling projects and blab endlessly about having expensive equipment to 'ensure you the best outcome,' it seems like they pour all their money into technology - which hasn't been shown to improve outcomes - and ignore some of the basics, like getting rid of that damned plastic furniture.
Seeing Beyonce's birth suite photos just reminds you of how in the Dark Ages many hospitals are when it comes to serving laboring women. And consider this - roughly only five percent are considered "Mother-baby friendly."
Sesame Street and breastfeeding in public
Like it hasn't already been done before, some think that breastfeeding should be "brought back" to The Street. I don't say that in a sarcastic tone - but mainly to say to all the haters, "It's already been done before. Twice. I don't remember hearing a lot of hoopla over it then or since, until now. One viewer remembers in retrospect:
Some argued that that kind of thing "should be taught at home," and compared it with bodily fluids and functions (as usual) - even going so far as to say, "What next? Abortions? Conception?" I mean, come on. The reason these people don't see many women nursing in public anymore is because numbskulls like them have effectively driven women to either choose formula because they don't want to run the risk of their baby getting hungry in public, or they are currently feeding their child in a disgusting toilet stall somewhere.
And how can you teach something at home when that behavior, for whatever reason, isn't modeled at home? That's just the way it is, unfortunately. Kids are less likely to learn about something they're never going to see.
Many of the people who complained have probably never seen a woman nurse in public, or if they did, they didn't realize it. When they hear the word "breast" they immediately think "full frontal nudity," pasties and dancing around like you're a stripper.
I pointed out that, until formula started heavily being marketed to mothers, women nursing in public, tops open, was not unusual. As the formula industry moved into hospitals at an alarming rate, the sexual revolution gave way to an attitude that changed our ideas about what breasts were for, and, I think, the porn industry found new and more convenient outlets to reinforce those ideas. Before, public, open breastfeeding was normal and seen every day, and sex was not. Suddenly, those roles were reversed: sex was brought out into the spotlight, de-shamed, and breastfeeding was relegated to the back closet as old-fashioned and "dirty." Now people argue that if you're a breastfeeding mother, you should just "stay at home." But if you want to flash cleavage at all times for no reason, well - that's okay, I guess.
Where's Maria when you need her?
More reading:
You're my baby (bottled-fed version) - Sesame Street
Does breastfeeding belong on Sesame Street? - San Francisco Gate
Beyonce's Birth Suite
First, Beyonce had her baby. Woo. I know, I'm like the 400th person to write a blog post about it, and really, it doesn't matter to me whether she had a natural birth or a cesarean. Well, in some ways it matters, yes - but not in the way some people think it does. Without rehashing too much of what everyone else has said, I do think how a woman gives birth matters: in the sense that surgical births are completely downplayed and approached with almost a blasé attitude, to the point where vaginal births - normal ones, anyway - are almost considered "old-fashioned." If she got the birth she wanted, then great - either way. When the entire world thought she had a cesarean at 37 weeks for breech, though, I wondered aloud, "What if this is the best information she had at the time? Many of us, including myself, have been there."
![]() |
| Photo: TMZ |
I thought back to my own births. I gave birth to three children in two hospitals. My first was a cesarean, I was ill-informed, scared, and alone. My husband wasn't allowed to stay overnight with me, despite the fact there was a very empty bed next to mine the entire time I was there. Nurses ignored my repeated requests for pain medication, despite the obvious fact that something was wrong, and it was just a miserable experience overall. When my baby was born, he was quickly shown to me and then taken out in the hallway to be weighed and measured - which my husband witnessed - as I lay on the operating table, hearing his first cries. I thought to myself, I've just given birth, but this is so freaking surreal. I want to hold my child. When my husband cried tears of joy, they actually asked him if he was going to be okay, like something was wrong with him. Seriously?!
When it was time to get up and move around for the first time, I was in such pain I felt like my body was being seared in half. The nurse was unsympathetic. They actually told me to go get my own breakfast. I was confused, half-drugged with drugs that only half-worked, wondering where I was supposed to go to get it. Someone felt sorry for me and brought me a turkey sandwich. I thought this was odd, considering when I had my VBAC two years later (the birth I could have done cartwheels after) they brought me all my meals. What?
For many women, just to have an unmedicated birth, they have to practically fight tooth and nail for it. Many are laughed at when they walk into the doctor's office with a birth plan. Many don't want anything all that special, except to maybe keep vaginal exams to a minimum, dim the lights and let them push in a position that feels comfortable to them, instead of to the doctor. In other words, they want their personal space respected as much as humanly possible, instead of be made to feel like a human science experiment, especially when it isn't necessary.
It's sad that we can't afford more laboring women the comforts of home within the "safe" confines of a hospital setting, since most people think hospitals are the best, safest place to give birth. Fine. Birthing centers seem to offer the best of both worlds, if you can find one. I know my city doesn't have any, that's for sure.
I think only within the last four or five years did my hospital convert their maternity rooms to private. In fact, there are those that can be reserved - as if you're a celebrity - but of course there's so few of them that they often get taken first. Birthing tubs and jacuzzis? Only four, available first-come, first-serve. I was denied access to them with my second birth because I was having a VBAC. Whatever. Apparently waterproof dopplers hadn't yet been invented in 2006. *eyeroll*
(Although they do mention CPMs, how they can lower infection and cesarean rates, fewer complications and healthier outcomes, based on WHO recommendations. So I'll give them that.)
Although hospitals go through expensive remodeling projects and blab endlessly about having expensive equipment to 'ensure you the best outcome,' it seems like they pour all their money into technology - which hasn't been shown to improve outcomes - and ignore some of the basics, like getting rid of that damned plastic furniture.
Seeing Beyonce's birth suite photos just reminds you of how in the Dark Ages many hospitals are when it comes to serving laboring women. And consider this - roughly only five percent are considered "Mother-baby friendly."
Sesame Street and breastfeeding in public
Like it hasn't already been done before, some think that breastfeeding should be "brought back" to The Street. I don't say that in a sarcastic tone - but mainly to say to all the haters, "It's already been done before. Twice. I don't remember hearing a lot of hoopla over it then or since, until now. One viewer remembers in retrospect:
Buffy breastfed Dakota in one episode; a former Canadian politician recently commented that "I remember seeing that and thinking about how proud she made aboriginal women because nursing is a part of our culture. During those days it was kind of a hidden thing, so to see Buffy doing it on Sesame Street was really something."I've been embroiled in a heated, rather idiotic debate on Facebook over the last few days with some people who think it's wrong. I have repeated myself at least three or four times: "It's already been done before, twice, and no one raised a stink about it then." Someone complained, "Our tax dollars at work!" I corrected him and said, "Actually, the US government subsidizes half of the infant formula consumed in this country." No response. I don't think anyone actually bothers to read any of the comments before issuing their own thoughtful gem. What a bunch of idiots.
Some argued that that kind of thing "should be taught at home," and compared it with bodily fluids and functions (as usual) - even going so far as to say, "What next? Abortions? Conception?" I mean, come on. The reason these people don't see many women nursing in public anymore is because numbskulls like them have effectively driven women to either choose formula because they don't want to run the risk of their baby getting hungry in public, or they are currently feeding their child in a disgusting toilet stall somewhere.
And how can you teach something at home when that behavior, for whatever reason, isn't modeled at home? That's just the way it is, unfortunately. Kids are less likely to learn about something they're never going to see.
Many of the people who complained have probably never seen a woman nurse in public, or if they did, they didn't realize it. When they hear the word "breast" they immediately think "full frontal nudity," pasties and dancing around like you're a stripper.
I pointed out that, until formula started heavily being marketed to mothers, women nursing in public, tops open, was not unusual. As the formula industry moved into hospitals at an alarming rate, the sexual revolution gave way to an attitude that changed our ideas about what breasts were for, and, I think, the porn industry found new and more convenient outlets to reinforce those ideas. Before, public, open breastfeeding was normal and seen every day, and sex was not. Suddenly, those roles were reversed: sex was brought out into the spotlight, de-shamed, and breastfeeding was relegated to the back closet as old-fashioned and "dirty." Now people argue that if you're a breastfeeding mother, you should just "stay at home." But if you want to flash cleavage at all times for no reason, well - that's okay, I guess.
Where's Maria when you need her?
More reading:
You're my baby (bottled-fed version) - Sesame Street
Does breastfeeding belong on Sesame Street? - San Francisco Gate
Labels:
birth politics,
breastfeeding,
celebrity births,
mommy wars
| Reactions: |
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